Just a C-PAP moment!
Wait just a C-pap minute. You are telling me I have about 30 more days to be seen by someone in the sleep and breathing disorders clinic before even getting a new CPAP machine?
What can a person tell you about this who spends their day setting appointments? They don't understand just how serious it is and concerning to the patient who has lost their functional CPAP machine recently and has no control of their on and off again breathing. They don't realize how upset a patient will get if they are suddenly without this life-saving breathing device from an unexpected malfunction, resulting in going without it for perhaps 2 months.
The fact is, when you ask them if your medical records go back 22 years, they tell you that they have recent records on you from 2015, and that was only 2 years ago from the current date, they have no clue as to the fact that your records go back a few or more decades and that the records that would explain your condition would not be available 2 years back but more like 22 years back.
The fact is, they don't keep those medical records for immediate disclosure on a patient and that is one of the problems. Long term care for people like myself, who have been determined by a physician to have a major sleep disorder called Sleep Apnea, needs to be addressed as significant especially when keeping long term records available for long term conditions, that last a lifetime, have to be on record to keep track of the progress of a patient's health over time. The person I spoke to on the phone this morning was shocked by my emotional reaction to her not having records of my particular condition any further back than just 2 or 3 years ago.
The fact is, the person who you call to get an appointment has no clue. They can't empathize or even relate to a patient since they are not educated about these type conditions. They only do paperwork and are usually right out of school and don't even have any medical knowledge at all.
I got an appointment for the end of the month. Fortunately this is earlier than what it would be if had not been for the fact that one person cancelled theirs at the end of this month, as I would be getting an even later appointment, sometime in November, to even see a doctor in the sleep and breathing disorder clinic. Putting all this into perspective, I realize that I need to chill more and not be emotional, although this is difficult when I am told by a medical source that going without a nasal CPAP machine can cause me to die in my sleep.
Well, no biggy. I always thought that this kind of death is preferred by most people who speculate how they might leave this world, over being in pain and misery on a life support machine in a coma or taking chemo or radiation for the big C. My condition could be life threatening but since there is a lot of stuff going on in the medical, the governmental and health care industy, with all of its insurance problems and up in the air situations with congress and the GOP with diversity in this area concerning health care as it currently stands, it's no wonder progress is so slow.
Slow like, being without a CPAP machine and snoring my wife awake all night, stopping breathing off and on all night and being told I need to be registered with a new clinic because nothing can be done about my getting a new CPAP machine until I visit the breathing and sleeping disorder clinic in about 30 days. And I am supposed to be calm and collected?
Image Credit » my pen is my own art created by me. Hope you like it. Anthony Davis created it.